About

This blog is dedicated to the stories and case histories of real people who have HNPP (Hereditary Neuropathy With Liability to Pressure Palsies) . Names and locations may well have been changed to protect anonymity, and all Doctors and health professionals names should be protected too.

Inspiration for this blog was drawn from the Personal Stories page on the HNPP.org website.

Case Histories will be presented as is, and do not or should not serve as a substitute for information care and support one can receive from the Medical Profession.

However, it has to be said that sometimes the Medical profession can be a little slow and unwilling to listen to anything more than the basic signs and symptoms of HNPP, and this can lead to a great deal of frustration for the people diagnosed with HNPP and their families.

The Aim is to present a wide range of histories, from the very mild to the more complicated. Often other conditions will be mentioned as life and increasing old age do not come alone. HNPP is very reactive to environment, routines and behaviours. Inevitably other conditions may well have an impact on the presentation of HNPP, even if no direct causal link can be established.

To Continue and read the Case Histories, select from the menu bar, or follow this link
Case Histories

If you would like your Personal Story, History with HNPP, or other anecdote about HNPP to appear on this blog, then please contact on the HNPP HELP facebook group via PM, or leave a message for me at this email address

This is a side project from my other blogs on HNPP and Neuropathy. Those blogs are generally my own personal experiences, with an increasing slant toward highlighting the most recent medical studies on HNPP.

 

 

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